The WTC Health Registry is a comprehensive and confidential health survey of those most directly exposed to the events of 9/11/01. Those who enrolled answered a 30-minute telephone survey about where they were on 9/11/01, and were asked to report the status of their health. This will allow health professionals to compare the health of those most exposed to the events of 9/11/01 with the health of the general population.
We hope to follow up with people periodically over the next 20 years to track any changes in their physical or mental health. There were no blood tests or medical exams required to enroll.
Some of the questions in the interview included:
- Where were you on 9/11/01?
- How long were you in areas with dust, smoke, and fumes?
- Have you had any health problems since 9/11/01?
- Have you experienced/felt more anxiety or sadness since 9/11/01?
- How can we contact you for follow-up and to share information?
All information provided is kept strictly confidential.
People eligible to enroll were:
- People who were in a building, on the street, or on the subway south of Chambers Street on 9/11/01.
- People involved in rescue, recovery, clean up, or other activities at the WTC site and/or WTC Recovery Operations on Staten Island any time between 9/11/01 and 6/30/02.
- Students and staff enrolled in schools (pre K-12) or day care centers south of Canal Street on 9/11/01.
- People who were living south of Canal Street on 9/11/01.
Many people from outside New York City were near the WTC site on 9/11/01. Thousands commuted to or visited New York City from the greater metropolitan area, and volunteers from all over the country came to the WTC site to help in the rescue and recovery effort.
In order to have a full and accurate picture of any long-term health effects related to 9/11/01, both people who have been healthy and people who have been ill were strongly encouraged to enroll in the WTC Health Registry.
The New York City Department of Health and Mental Hygiene will contact enrollees periodically to:
- Do follow-up telephone interviews
- Notify enrollees of health studies for which they might be eligible
- Verify address information
- Mail questionnaires
- Provide enrollees with health information
During this time, many people will relocate. WTC Health Registry staff will periodically contact enrollees to update contact and health information.
The WTC Health Registry is an unprecedented collaborative effort involving the New York City Department of Health and Mental Hygiene; the federal Agency for Toxic Substances and Disease Registry; and numerous academic institutions, public agencies, and community groups. The Registry coordinates with other institutions conducting additional WTC-related studies, including:
- U.S. Centers for Disease Control and Prevention (CDC)
- Columbia University
- Fire Department of New York City
- John Hopkins Bloomberg School of Public Health
- Mount Sinai Medical Center
- New York University
- New York School System
- New Jersey Department of Health
- Hunter College
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